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av Malin | okt 1, 2018 | Anpassad barnomsorg, Autism, Barnomsorg, Behandling, Biståndsenheten, Eget Företag, Ekonomi, Ensamstående, Familjen, FK, Försäkringskassan, Förvaltningsrätten, Funkisförälder, Gastropares, Immunbrist, Immunsjukdom, Infektion, Infektionskänslighet, Jag tycker till, Jejunoknapp, Jobba hemifrån, Kammarrätten, Klinisk Genetik, Kommunen, Kontaktfamilj, Kräkningar, LSS, Max, Motgångar, Myndigheter, Peg/Knapp, Personlig Assistans, Pierre Robins sekvens, Portacath, PRS, Socialtjänsten, Sondmatning, Utbrändhet, Utredning, Vardag |
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Här kommer en längre koncentrerad uppdatering gällande vad som hänt och händer i vårt liv. Jag vet att det nu var snart en månad sedan jag skrev sist, min vision var inte att det skulle vara tyst här under tiden. Men pga omständigheterna i livet så är det tyvärr vad...
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av Malin | aug 6, 2018 | Autism, Behandling, Beteendeproblematik, Ensamstående, Feber, Funkisförälder, Gastropares, Immunbrist, Immunsjukdom, Infektion, Infektionskänslighet, Jejunoknapp, Kräkningar, Läkarbesök, Max, Operation, Peg/Knapp, Personlig Assistans, Pierre Robins sekvens, Portacath, PRS, Sjukhusvistelse, Sondmatning |
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Multitasking-jobbig-mamma igen! Som några av er kanske läste förra veckan på min facebooksida för bloggen (se här bredvid och gilla gärna sidan om ni inte redan gör det för mer uppdateringar) så kanske denna multitaskande mamman råkade tjata och ligga på lite väl...
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av Malin | aug 4, 2018 | Autism, Beteendeproblematik, Funkisförälder, Immunbrist, Immunsjukdom, Infektionskänslighet, Jejunoknapp, LSS, Max, Peg/Knapp, Personlig Assistans, Pierre Robins sekvens, PRS, Shopping tips, Sondmatning, Tips, Vardag |
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Detta inlägg innehåller adlinks. Som ni vet så har jag ju haft ett rätt stort projekt på gång de senaste månaderna. Gällande att lyckas lösa en egen form av anpassning i hemmet för att Max ska få ett lämpligt rum där både han och alla hans mediciner/nutrions tillbehör...
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av Malin | jul 25, 2018 | Funkisförälder, Anhörigvårdare, Avlösarservice, Biståndsenheten, Eget Företag, Ekonomi, Ensamstående, FK, Föräldraskap, Försäkringskassan, Förvaltningsrätten, Jag tycker till, Kammarrätten, Kommunen, Livet, LSS, Motgångar, Myndigheter, Personlig Assistans, Socialtjänsten, Sömnbrist, Utbrändhet, Vardag |
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För många betyder det vila från arbete men att ändå få ersättning ekonomiskt likt semesterersättning. För andra betyder det ingenting, att ta ”semster” från sitt barn eller anhörig med någon form av funktionsvariation eller annan svårighet, är inget som...
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av Malin | jul 24, 2018 | Ensamstående, Familjen, Föräldraskap, Framsteg, Funkisförälder, Immunbrist, Immunsjukdom, Infektionskänslighet, Jejunoknapp, Kärlek, Livet, Lycka, Mamma, Max, Peg/Knapp, Personlig Assistans, Sebastian, Vardag |
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Innlägget innehåller adlinks Man får göra det man kan för att försöka ta till vara på sommarens alla fina dagar. Detta kanske låter väldigt konstigt och udda för många utav er, men enda sedan Max föddes i februari av 2014. Så har han varje sommar varit för sjuk för...
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av Malin | jul 9, 2018 | Andningsproblem, Andningsuppehåll, Ångest, Autism, Beteendeproblematik, Biståndsenheten, Feber, FK, Försäkringskassan, Framsteg, Funkisförälder, Gastropares, Immunbrist, Immunsjukdom, Infektion, Infektionskänslighet, Jag tycker till, Jejunoknapp, Kommunen, Kräkningar, Läkarbesök, LSS, Lycka, Max, Myndigheter, Peg/Knapp, Personlig Assistans, Pierre Robins sekvens, PRS, Sjukdom, Sömnbrist, Sondmatning, Utbrändhet |
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Jag har gråtit, skakat, inte förstått att det är sant och jag vet inte ens om jag gör det nu. Enda sedan jag fick beskedet så har jag levt som i en tom bubbla. Mina känslor har varit allt från enorm lättnad, till att helt plötsligt gråta till synes utan anledning,...
