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av Malin | nov 5, 2019 | Autism, Eget Företag, Funkisförälder, Immunsjukdom, Infektionskänslighet, Jobba hemifrån, Läkarbesök, Logoped, Mag, tarm & levermottagning, Max, Peg/Knapp, Personlig Assistans, Sjukhusvistelse, Sondmatning |
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Då laddar vi återigen för en lång dag på barnsjukhuset igen. På dagens schema står oerhört mycket, samtidigt.. Så hur vi ska lyckas hinna med allt vet jag inte riktigt, men det löser sig nog förhoppningsvis. Vi ska försöka hinna med följande:...
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av Malin | jul 20, 2019 | Autism, Beteendeproblematik, Bilder, Bo på landet, Ensamstående, Familjen, Föräldraskap, Funkisförälder, Lantliv, Livet, Mamma, Max, Sebastian, Vardag |
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Dagar med halvdåligt väder får både barn och vuxna att till slut klättra på väggarna av ren frustration. Så för att förena nytta med nöje, så tog vi oss en tur i skogen idag. Vi gick på svampjakt samtidigt som Max fick öva på sin motorik bland kottar och barr. Man vet...
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av Malin | mar 19, 2018 | Andningsproblem, Andningsuppehåll, Ångest, Autism, Behandling, Beteendeproblematik, BNK, Feber, Föräldraskap, Funkisförälder, Gastropares, Immunbrist, Immunsjukdom, Infektion, Infektionskänslighet, Jejunoknapp, Kräkningar, Läkarbesök, LSS, Lungmottagningen, Mag, tarm & levermottagning, Mamma, Max, Motgångar, Peg/Knapp, Pierre Robins sekvens, PRS, Sjukdom, Sjukhusvistelse, Sondmatning, Utbrändhet, Utredning, Vardag |
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En riktig skitdag på barnsjukhuset är bara förnamnet på denna dagen, mitt hjärta har verkligen gått sönder tusen gånger om idag. Idag har det varit en riktigt jobbig dag, för alla inblandade. Men speciellt för Max.. Jag känner mig som en riktigt dålig mamma, som inte...
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av Malin | mar 18, 2018 | Ångest, Autism, Avlösarservice, Behandling, Beteendeproblematik, BNK, Ensamstående, Feber, Funkisförälder, Gastropares, Immunbrist, Immunsjukdom, Infektionskänslighet, Jejunoknapp, Kräkningar, Läkarbesök, Livet, LSS, Mag, tarm & levermottagning, Mamma, Max, Peg/Knapp, Pierre Robins sekvens, PRS, Sjukdom, Sjukhusvistelse, Sondmatning, Utbrändhet, Utredning, Vardag |
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Dags att behandla Max immunsjukdom igen. Imorgon är det måndag igen vilket i vanlig ordning för oss betyder att Max ska få behandling på barnsjukhuset igen. Var tredje vecka är vi där nämligen och Max får speciell medicin för hans immunsjukdom i dropp rakt in i blodet...
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av Malin | jan 15, 2018 | Ångest, Barnpsykolog, Behandling, Beteendeproblematik, BNK, Föräldraskap, Funkisförälder, Kalla Fakta, Läkarbesök, LSS, Max, Utredning, Vardag |
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Besök nummer ett. Idag är det dags för något som jag sett fram emot och haft ångest för samtidigt, i flera veckor nu. Idag är det nämligen Max allra första besök på BNK (Barnneuropsykiatriska Kliniken). Normalt sett är det minst ett års väntetid för att få komma till...
