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av Malin | jun 10, 2018 | Ångest, Be om hjälp, Eget Företag, Ehlers Danlos Syndrome, Ekonomi, Ensamstående, Hälsa, Hjälp, Jag tycker till, Jobba hemifrån, Medmänsklighet, Motgångar, Ta emot hjälp, Utbrändhet, Vardag |
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Ni alla vet ju vid detta laget omfattningen av den ständiga kampen jag för dagligen, för att min son med sina dolda funktionsvariationer samt särskilda behov ska få den hjälpen som han egentligen har laglig rätt att få. Denna process har ju pågått i mer än 3 ½ år nu...
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av Malin | apr 23, 2018 | Ångest, Autism, Barnpsykolog, Behandling, Beteendeproblematik, Biståndsenheten, BNK, Ehlers Danlos Syndrome, Endometriosis, Ensamstående, Feber, FK, Försäkringskassan, Framsteg, Funkisförälder, Gastropares, Hjälp, Immunbrist, Immunsjukdom, Infektion, Infektionskänslighet, IVA, Jag tycker till, Jejunoknapp, Kommunen, Kräkningar, Läkarbesök, LKG, LSS, Lycka, Mag, tarm & levermottagning, Mamma, Max, Myndigheter, Nyhetsmorgon, Operation, Peg/Knapp, Personlig Assistans, Pierre Robins sekvens, PRS, Sjukdom, Sömnbrist, Sondmatning, TV4Play, Utbrändhet, Vi syns i tidningen, Vi syns i TV |
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Fredagen den 13/4 2018, blev en dag som för alltid kommer ha en plats i mitt hjärta. Jag vet inte hur många gånger som jag har försökt skiva och publicera detta inlägg nu, haha. Sedan den 13/4 så har jag försökt få med alla länkarna och mitt i så har allt börjat...
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av Malin | mar 14, 2018 | Ångest, Andningsproblem, Andningsuppehåll, Anhörigvårdare, Autism, Avlösarservice, Beteendeproblematik, Biståndsenheten, BNK, Eget Företag, Ehlers Danlos Syndrome, Endometriosis, Ensamstående, Familjen, Föräldraskap, Förvaltningsrätten, Funkisförälder, Gastropares, Immunbrist, Immunsjukdom, Infektionskänslighet, Jejunoknapp, Jobba hemifrån, Kalla Fakta, Kammarrätten, Kommunen, Kontaktfamilj, Kräkningar, LSS, Mamma, Max, Motgångar, Myndigheter, Peg/Knapp, Personlig Assistans, Pierre Robins sekvens, Projekt, PRS, Sjukdom, Sjukhusvistelse, Socialtjänsten, Sömnbrist, Sondmatning, Utbrändhet, Utredning, Vi syns i tidningen |
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Jag vet inte ens hur jag ska skriva detta eller var jag ens ska börja berätta, hur jag ska skriva detta utan att använda en massa svordomar och annat hemskt. För de känslorna jag känner just nu vet jag knappt hur jag ska kunna sätta ord på. Ska jag vara helt ärlig så...
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av Malin | jan 13, 2018 | Andningsproblem, Andningsuppehåll, Anhörigvårdare, Avlösarservice, Barnomsorg, Behandling, Beteendeproblematik, Biståndsenheten, BNK, Eget Företag, Ehlers Danlos Syndrome, Ekonomi, Ensamstående, Familjen, Feber, FK, Försäkringskassan, Förvaltningsrätten, Funkisförälder, Gastropares, Immunbrist, Immunsjukdom, Infektion, Infektionskänslighet, IVA, Jejunoknapp, Jobba hemifrån, Kalla Fakta, Kammarrätten, Klinisk Genetik, Kommunen, Kontaktfamilj, Kräkningar, Läkarbesök, LKG, Logoped, LSS, Lungmottagningen, Mag, tarm & levermottagning, Mamma, Max, Motgångar, Myndigheter, Operation, Öron-Näsa-Hals, Peg/Knapp, Personlig Assistans, Pierre Robins sekvens, Sebastian, Sjukdom, Sjukhusvistelse, Socialtjänsten, Sömnbrist, Sondmatning, Utbrändhet, Utredning, Vi syns i TV |
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Yes ni läste rätt, Kalla Fakta kommer lyfta våran situation på tv4 med start den 22 januari, då de granskar hur personer hamnat i kläm pga alla besparningarna inom den Personliga Assistansen. Detta är det stora hemliga projektet som jag jobbat med bakom kulisserna i...
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av Malin | mar 30, 2017 | Ångest, Ehlers Danlos Syndrome, Endometriosis, IBS, Läkarbesök, Vardag |
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Så då var fullen ÄNTLIGEN på väg ner i magen och jag ska idag ÄNTLIGEN få träffa en reumatolog som tydligen kommer till min vårdcentral två gånger om året bara. Maxen är ju fortfarande sjuk men hoppas...
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av Malin | feb 15, 2017 | Ehlers Danlos Syndrome, Ensamstående, Livet, Vardag |
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Idag är en sån där dag då jag är överlycklig över att jag har lyckats orka duscha och tvätta håret! High five till mig! 👏Var hos sjukgymnasten igår för min egen skull och resultatet av det var väl...
